Sunday, February 6, 2011

Date Night with someone other than my husband!

My husband and I get two date nights a month. We've started a new date night once a week - with the boys. Since we have three boys, they don't get a lot of one-on-one time with us, so each week, a boy will get to choose a parent for his "date" and the activity he'd like to do with us. This way, each boy gets a turn at special time with Mama or Da.

It was our first time trying this tonight and Sebastian got to go first. He got a Date Night with Mama! I offered up a few choices for activities: Color Me Mine pottery place, ice skating at the local rink, or bowling. He chose bowling - and actually it was a perfect night to try this out, because the bowling alley was empty with everyone home for the SuperBowl. we had the place to ourselves and didn't have to wait in line or deal with throngs of people.

We got a bumper lane and the ball ramp. Sebastian, being only 4 years old, can't put his fingers in the holes quite yet, so he lifts the ball with two hands onto the ramp and gives it a push. Neither of us broke 100; I haven't bowled in YEARS. But we took turns, watched the scores on the screen, and had some laughs.

We only played one game; Sebastian was done after that. "My arms are tired, Mama..." I then gave him free choice on where to go for dinner. I offered up a Mexican restaurant because Sebastian loves tacos and I was hoping he wanted to try something new.

Sigh, but no. He thought the bowling alley was the coolest place EVER, and wanted to eat there. Burgers, fries and a slushie it is then. Was it our healthiest choice ever? No. Was there fruit or veggies involved? No.

But as he smiled at me with a blue mouth from the slushie, I knew he had a great time out on his first date with Mama.

Thursday, February 3, 2011

Stress Baking

When I get stressed, I bake.

Somehow, the combining of ingredients, mixing them together, putting them in the oven and getting something completely new is so soothing. And delicious.

I've been really stressed, and I think I should consider opening a bakery. At least I would have an outlet for my stress and I wouldn't feel like I had to eat what I bake.

My waistline can't take it.

Wednesday, February 2, 2011

D-Day

I think the world stopped moving for me on D-Day, or Diagnosis Day - the day in 2006 when my son, Tristan, was diagnosed with Autism. People on the streets, in their cars, and in stores kept going on with their lives around me, but my world stopped.

How could this happen? He was born healthy and was meeting all of his developmental milestones. He wasn't acting all "Rain Man" like, and I had seen Autism in my days as a Teacher's Aide in a special education school; Tristan did not do any of the behaviors those kids had - there was no repetitive hand flapping or rocking back and forth.

And yet there were things he did that puzzled me. He had a speech delay, but a strange one. He was really smart for his age, knew his letters and numbers by the time he was two and a half years old, would repeat lines of his favorite movies and could say words like "volcano," but couldn't hold a conversation. He had major tantrums and hated when I left him with anyone else.

I even uttered the words, "Do you think he has autism?" at one point, and was dismissed with a "Oh, that's silly."

We were having our second child at the time these red flags started popping up, and we all thought that perhaps he was upset about the impending arrival of the new baby.

But by the time Sebastian was 6 months old and Tristan was two and a half years old, we knew there was some problem. The day we KNEW something was wrong, we were at Disney World, the happiest place on earth. What kid doesn't love Disney? Tristan was having a really difficult time, and in line for rides or security, he would flip out, screaming about the wait in line, the close proximity of people to him. He even hit me and his Dad, not because he was being naughty, but because he was so upset, he had no outlet for his anxiety. That's when we KNEW.

And then D-Day, Diagnosis Day. "Your son has autism."

The days, weeks, and months that followed D-Day felt like a blur. Tristan was in 20 - 25 hours of therapy per week for more than two years. We had monthly team meetings, regular testing for delays, reviews of goals and objectives we wanted him to reach, and endless discussions about his progess.

In those years following D-Day, we watched our second son, Sebastian, with such a critical eye. Siblings of children with Autism have a much higher rate of being diagnosed with it as well. He began speech therapy at 18 months, but was discharged from therapies a year later. With a great sigh, we dodged the Autism bullet with Sebastian.

And in the mix of all that - an unplanned pregnancy. A third child - another boy, Emerson. Another son to watch with that critical eye. Again, Emerson needed speech therapy. we started him at 15 months this time, hoping that he would follow Sebastian in needing just a little help and would be discharged a year later.

That critical eye picked up a  few "red flags" along the way, but they were small warning signs. He didn't like the tags in his clothes and preferred to be bare-footed most of the time. But a lot of kids are like that, I reasoned. He didn't like loud noises and hated the crowds of the holiday shopping. But I don't like that either, I reasoned.

But there were things I couldn't reason away: lack of meaningful eye contact, not always responding to his name, constant need for running and jumping.

And then, two weeks ago, there were were again. "Your son has Autism."

Second D-Day.

My world stopped again.

Somehow the second diagnosis seems more daunting than the first.  The first time, we jumped in with both feet, with all of our energy. We were ready to get our son the help he needed, trying to get him to a place where he was doing the best he could. And it was HARD. So DIFFICULT. TIRING. EXHAUSTING.

But Tristan is now in that place where he is doing the best he can. We know the therapies work, because he's doing so well right now. Above-average in reading. Making friends at school. Participating in BoyScouts. In a regular First-Grade class, doing the same school work as every one else.

Now we KNOW the road that is ahead of us. We know how tiring and exhausting it is. Do we have the energy to start all over again? To travel this road once more?

It's not a matter of having the energy. You find that energy for your kids, no matter what. Our son needs help and we will get it for him. We will spend hours in meetings, therapies, doctor appointments - whatever it takes to get him to that place we know he can go.

So here we go again....

Snow Day

School is closed. Why? I'm not sure. I was expecting snow up to my hips this morning, but we only have 4 or 5 inches of snow, which in Rochester, New York, is nothing.

So that means all three boys will be home with me today. That's Day #2 of cabin fever with three kids under the age of 6.

I was watching the movie "About a Boy" the other night and Hugh Grant's character was talking about increments of time. Everything can be measured in 30 minute units - bath: 1 unit, movie: 3 units. Because thinking about time in larger chunks can be too daunting. So that is what I will try today.

Breakfast: 1 unit
Spongbob episode: 1 unit
Getting dressed and brushing teeth: 1 unit
Arts and crafts activity: 1 unit

Perhaps when the roads have cleared, we can go out for a little while, maybe to the grocery store and get some baking supplies. Baking cookies makes the house smell great and its at least 2 units of time!

Back to school tomorrow. Please.

Tuesday, February 1, 2011

Storm of the Century?

There is a storm a'comin! The forecast is calling for 12 - 20 inches of snow by tomorrow afternoon, so I'm battening down the hatches and going to weather out the storm here at home with the boys.

I just hope I survive another day in the house with three little boys. Tristan has strep, so he was home from school today. I have no doubts that school will be closed tomorrow, so that's two whole days with the boys cooped up in the house.

We got through today o.k. At one point, all three boys were crying at the same time, and I had a total "Serenity Now" moment, but we got through it and the boys actually had some nice cooperative play together - without screaming and whining and falling to pieces.

Let's see how we do tomorrow with a snow day.